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lynn
Lokahi
289 Posts |
 Posted - 07/08/2009 : 10:47:10 PM
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We have a number of guests this week on Pakele Live! with Tony Solis: Herb Ohta, Jr., Walt Keale, Jon Yamasato, Jennifer Perri, Brad Kawakami, Kumu Hula Leialoha Lim-Amina, Ken Lykes & Makke, and more! This is a special show to raise both money and awareness for Chiaki and Kuri Shiozawa, both of whom suffer from a progressive, degenerative, genetic and incurable disease called Spinocerebellar Ataxia (SCA).
SCA affects the spinal cord and the cerebellum, the area of the brain that controls voluntary motor movement, balance, and muscle tone. Patients lose the ability to control their own movements, including speaking, eating, swallowing, walking, and hand/arm movements. The disease has many sub-types based on the specific gene that is affected. Therefore, the severity and onset age of the disease varies considerably from person to person.
Chiaki and Junko Shiozawa moved to Hawai’i when they noticed their then-5-year-old daughter, Kuri, who suffered from severe asthma, was healthier whenever they vacationed here. Junko, who was a TV reporter and journalist in Japan, found work as a writer for a local paper and Chiaki, a TV producer in Japan, established Hawaii Web TV, a video production business. In 2008 the family received the devastating news that Chiaki, who had been suffering from a number of suspicious symptoms, was afflicted with DRPLA - a severe type of SCA. Unlike most types of SCA, DRPLA affects not only the patient’s motor skills, but also personality, the ability to control emotions, and the general thinking process. It was then discovered that daughter Kuri’s constant health challenges were also due to DRPLA. (DRPLA is a devastating form of SCA in that the age of onset is earlier and more severe with each generation.)
Junko kept the family’s plight to herself for the past year while caring for both Chiaki (who can no longer hold a camera to work) and Kuri (who has difficulty eating, bathing, and sleeping), and running the business – their only source of income. A few friends, who knew nothing of her struggles until recently, are now helping Junko to manage her family and business - but she needs additional assistance.
The goal of this special Pakele Live! is to assist the family monetarily, as the medical expenses are immense and everyday living is difficult without outside help. In addition to local musicians donating their talent and time, KoAloha has donated an ‘ukulele that will be auctioned. Pakele Live’s creator Pali Ka’aihue, of the Hoku Award-winning band PALI, and Tony Solis, the show’s host, co-producer, and director are donating their time and the funds to produce and film this charity event. Hawaiian Moon is donating the matching outfits that the Shiozawa family will wear to the event.
Please join us for this very special Pakele Live! this Thursday, July 9, from 6-8 p.m. in the Pakele Lounge at the Ala Moana Hotel. (410 Atkinson Dr., Honolulu). Free parking is available next door at Ala Moana shopping center. Admission to the show is free, but donations for the family will be accepted. Donations are also being accepted at any Central Pacific Bank branch (information below). You may either walk in or wire transfer funds. (To donate via walk-in - cash or check at ANY BRANCH - please provide the account number and name. To donate via wire transfer, please provide the swift code, routing number, and account number.)
Name of Bank : Central Pacific Bank
Branch Name : Waikiki Branch
Branch Number : 006
Branch Address : 105 Uluniu Ave. Honolulu, Hawaii 96815 U.S.A.
Head Office Address : 220 South King St. Honolulu, Hawaii 96813 U.S.A.
Bank's Call Center : (808) 544-0500
Routing Number : 121301578
Swift Code : CEPBUS77
Account Number : 1001157856
Account Name : Kuri Cri Shiozawa
Those who can’t join us in person may watch live online at: http://www.pakelelive.com/
or in Japan at: http://www.j-wave.co.jp/
(If you watch online, don’t forget to email the show at pakele @ lava.net to say hi and let us know you’re watching – and from what part of the world!)
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hawaiianmusiclover06
`Olu`olu
USA
562 Posts |
Posted - 07/11/2009 : 02:54:20 AM
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Missed watching Pakele Live again. Wish I could have seen it. I bet it was good since Herb was playing.
Alana :) |
Aloha Kakou, maluhia a me aloha mau loa (Hello everyone, peace and love forever) |
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deancruzin
Aloha
USA
5 Posts |
Posted - 07/11/2009 : 10:07:52 AM
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| I saw Pakele and was transfixed by the talent assembled. Friends have asked me,"will it be re-broadcast somewhere?" I answer , I bettah ask Lynn, so dats what I'm doing.... Mahalo nui |
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lynn
Lokahi
289 Posts |
Posted - 07/15/2009 : 10:07:51 PM
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quote:
Originally posted by deancruzin
I saw Pakele and was transfixed by the talent assembled. Friends have asked me,"will it be re-broadcast somewhere?" I answer , I bettah ask Lynn, so dats what I'm doing.... Mahalo nui
Kala mai, Bruddah Bill - just saw this... it won't be rebroadcast in its entirety (like online), but portions of it might be shown on the OC 16 TV version in the new season - I'll have to ask Tony... if I don't get back to you soon, email or call... (good excuse, eh? like you need one...) 
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Herb Ohta, Jr., Walt Keale, more - Pakele Live!
